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University College London Hospitals NHS Foundation Trust

Clinical Nurse Specialist in Neuromuscular Diseases (Peripheral Nerve)

LondonOn-Site
PermanentFull-Time
£58,133 - £65,261per annumFTE
Posted today

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Description

Job summary
An exciting opportunity has arisen for a Band 7 Peripheral Nerve Clinical Nurse Specialist post within the Centre for Neuromuscular Diseases (CNMD). The post holder will work as a CNS supporting people living with inherited neuropathies. You will be working 37.5 hours per work over 5 days.

Based at the National Hospital for Neurology and Neurosurgery, this post offers the opportunity to work alongside world experts in inherited neuropathies. This post sits within the neuromuscular nursing team at CNMD, we currently have 5 band 7, and 1 band 8a clinical nurse specialist working to support people living with a range of neuromuscular diseases.

You will also have the opportunity to work alongside wider NHS services such as the National Amyloid Centre and Great Ormond Street Hospital for people transitioning to adult services.

We require somebody who can work both autonomously and as part of a wider team. You must be able to work flexibly to meet the demands of the role and be an excellent communicator.

Main duties of the job
  • To see and assess patients living with inherited neuropathies and be able to create and appropriate, patient focused care plan.
  • You will work closely with the wider multi-disciplinary team to provide outstanding care for patients and carers living with inherited neuropathies.
  • You will be able to work autonomously to support people with peripheral nerve diseases, conducting telephone clinics and attending face to face MDT clinics.
  • You will be able offer up to date and accurate knowledge both via telephone and face to face on a regular basis.
  • You will be able to provide support and share knowledge on community support, genetics and living holistically with an inherited neuropathy.
  • You will be trained in arranging and undertaking skin biopsies to assist with diagnosis.
  • You will be expected to maintain professional relationships with national agencies to ensure that patients have access to the latest advice and care available.
  • To support the wider CNMD specialist nursing team as appropriate and attend regular CNS update meetings.

About us
University College London Hospitals NHS Foundation Trust (UCLH) is one of the most complex NHS trusts in the UK, serving a large and diverse population. We provide academically led acute and specialist services, to people from the local area, from throughout the United Kingdom and overseas. Our vision is to deliver top-quality patient care, excellent education, and world-class research.

We provide first-class acute and specialist services across eight sites:
  • University College Hospital (incorporating the Elizabeth Garrett Anderson Wing)
  • National Hospital for Neurology and Neurosurgery
  • Royal National ENT and Eastman Dental Hospitals
  • University College Hospital Grafton Way Building
  • Royal London Hospital for Integrated Medicine
  • University College Hospital Macmillan Cancer Centre
  • The Hospital for Tropical Diseases
  • University College Hospital at Westmoreland Street

We are dedicated to the diagnosis and treatment of many complex illnesses. UCLH specialises in women's health and the treatment of cancer, infection, neurological, gastrointestinal and oral disease. It has world class support services including critical care, imaging, nuclear medicine and pathology.

We are committed to sustainability and have pledged to become a carbon net zero health service, embedding sustainable practice throughout UCLH. We have set an ambitious target of net zero for our direct emissions by 2031 and indirect emissions by 2040.

Details
Date posted: 05 November 2026
Pay scheme: Agenda for change
Band: Band 7
Salary: £58,133 to £65,261 a year per annum inclusive of HCAS
Contract: Permanent
Working pattern: Full-time
Reference number: 309-UCLH-8406628
Job locations: National Hospital for Neurology & Neurosurgery, UCLH, Queen Square, London, WC1N 3BG, United Kingdom

Person Specification
Essential
  • Registered Nurse Part 1, 2 or relevant section of the register
  • Relevant post-registration programme
  • Teaching/Assessment programme
  • Relevant post registration neurology experience in same specialty (HLP2), (FO)
  • Up to date knowledge of medicines management and local guidelines
  • Evidence of good written oral and written communication
  • Demonstrates knowledge of working with people with long-term conditions and potential implications
  • Demonstrates awareness of the importance of working in a multi-disciplinary team
  • Communicates effectively verbally, in writing and in electronic formats
  • Communicates with patients and carers in an empathetic manner
  • Demonstrates understanding of good practice in Customer Care
  • Presentation skills
  • Demonstrates evidence of professional development in line with KSF, maintains updated Portfolio
  • Experience as a preceptor/facilitator/mentor
  • Reflective in Practice
  • Demonstrates evidence of ability to educate others
  • Demonstrates up to date knowledge and expertise in the specialty
  • Evidence of developing & leading nurse led clinics / services (HLP2)
  • Evidence of ability to work collaboratively (HLP1) / autonomously (HLP2)
  • Demonstratable understanding of the Equality, Diversity, and Inclusion and/or Knowledge of the NHS obligations under the Equality Act 2010 and the Public Sector Equality Duties
  • Flexible approach to shift patterns
  • Knowledge of key professional issues and NMC guidelines relating to professional practice
  • Ability to manage and evaluate change
  • Up to date knowledge of speciality

Desirable
  • Leadership development programme (HLP2)
  • Management development programme (HLP2)
  • Completed/completing Masters Degree (HLP2) (FO)
  • Previous experience in a specialist nursing role, looking after people with long term conditions
  • Completed/completing Honours Degree in Nursing, midwifery, research or ethics (HLP1), (SO)
  • Experience in undertaking virtual/telephone clinics
  • Presentation skills
  • Knowledge of neuromuscular diseases
  • Knowledge of social care and out of hospital support
  • Published articles / poster presentations

Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Certificate of Sponsorship
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website.

From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants.

UK Registration
Applicants must have current UK professional registration. For further information please see NHS Careers website.

Employer details
Employer name: University College London Hospitals NHS Foundation Trust
Employer's website: https://www.uclh.nhs.uk

Contact
Neuromuscular Lead Nurse, Laura Compton, laura.compton@nhs.net

The closing date is 18 November 2026.
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